Friday, August 21, 2009

Hypothalamic Amenorrhea is here to stay?!

My bladder is NOT falling out.

Praise the lord.

At least my OB/GYN doesn’t think so. That’s the good news. I go for a diagnostic ultrasound next week to rule out any form of abdominal prolapse, but he feels that would be extremely unlikely.

My urine is still bloody after finishing my antibiotics, which is what necessitated the trip to my lady-parts doc yesterday. Cipro is heavy duty stuff. The urgent care doc wasn’t fooling around when he prescribed it. The OB/GYN feels that any infection I had has been eradicated, but the irritation to the blood vessels in my bladder is still going strong. I should keep drinking my water and take it easy for a few more days. If it hasn’t resolved itself by next week, he’ll refer me to a urologist.

Now for the not so good news. At my annual exam last month Dr. K and I discussed the fact that I still haven’t had a post-partum AF, despite the fact that I’ve been done nursing for about 5 months. Dr.K was at a loss for explanation, since I no longer fit the profile for traditional hypothalamic amenorrhea. She suggested that I come back for bloodwork in September if I still haven’t had a visit from Auntie.

Dr. J already knew about this because my case was brought up at the group’s weekly staff roundtable discussion. Apparently my ute is well known at Emory. Dr. J’s concern during my visit was not so much about my bloody pee-pee, but my lack of AF. The consensus among the doctors was that NOTHING can be done. I’ve had HA for so many years that my “wiring is broken” and my body doesn’t know how to produce the right hormones at the right times.

The recommendation was that I get an ultrasound at my yearly exams, and if my lining looks too thick they’ll give me an estradiol/provera cocktail to clean it out. However it’s unlikely I’ll have any growth. When I’m ready to have baby #2 in a few years, I’ll need to go through the same fertility treatments again. Hey, I know that works right? Yeah buddy, like it’s that easy.

This goes against what my RE told me last year. She said I would most likely return to normal cycling after my baby was born. Or at least I think she told me that. Possibly I made this assumption up in my own mind? Either way, the idea of letting my reproductive system collect dust for the next few years does not sit well with me.

I’ve got an appointment scheduled with my RE for next month to discuss my options. The plan was to wait 3-4 more years before trying for #2, so M could get all nice and cozy at a mainline. Funny. We may need to scrap that pipe dream and get things cooking sooner than later if my fertility appears to have a limited shelf life.

A favorite new phrase I’ve adopted recently…..If you want to make God laugh, tell him your plans.


  1. Ugh, I am sorry to hear that. I am still BFing so I am not surprised by AF hasn't made a visit, but I am scared to think about TTC #2. I have a feeling we might be back to the RE too.

  2. I'm sorry to hear about all this. I agree with your favourite phrase - God does laugh when you tell him your plans! We've had so many, like waiting to have a baby until my husband was with a major airline - then he was made redundant! Hey ho, life goes on, and babies just need love and square or two of carpet really (or at least, that's what i was told once by a doctor!)

  3. That's very true. People always say if you wait for the perfect time to have kids, then you'll never have them.

    I feel thoroughly blessed to have one baby, but it's hard when you have a planner personality and can't be in control. This reminds us that ultimately we're not. We believe in prayer, so this is something we need to give to a higher power.

  4. I will be praying for you and your doctors. I am the poster child for trying to plan my own life, to be constantly reminded by God,that my plans make him have side cramps from laughing so hard!